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Usher's Syndrome

What is Usher's Syndrome?

Usher syndrome is an inherited condition that results in serious hearing loss and progressive vision loss caused by retinitis pigmentosa (RP). Usher's syndrome is usually present at birth or shortly thereafter.

Organizations:

Helen Keller National Center (exit DHS)
141 Middle Neck Road
Sands Point, NY 11050
Phone: (516) 944-8900
Email: hkncinfo@hknc.org 

Foundation for Fighting Blindness (exit DHS)
11435 Cronhill Drive
Owings Mills, MD 21117-2220
Toll Free: (888) 394-3937
TDD: (800) 683-5555
Email: info@blindness.org

Resources:

Understanding Usher's Syndrome (exit DHS)

Last Revised: June 21, 2012