Usher's Syndrome
What is Usher's Syndrome?
Usher syndrome is an inherited condition that results in serious
hearing loss and progressive vision loss caused by retinitis
pigmentosa (RP). Usher's syndrome is usually present at birth or shortly
thereafter.
Organizations:
Helen Keller National Center (exit
DHS)
141 Middle Neck Road
Sands Point, NY 11050
Phone: (516) 944-8900
Email: hkncinfo@hknc.org
Foundation for Fighting Blindness
(exit DHS)
11435 Cronhill Drive
Owings Mills, MD 21117-2220
Toll Free: (888) 394-3937
TDD: (800) 683-5555
Email: info@blindness.org
Resources:
Understanding Usher's
Syndrome (exit
DHS)
Last Revised:
June 21, 2012 |
