Usher Syndrome

What is Usher Syndrome?

Usher syndrome is an inherited condition that results in serious hearing loss and progressive vision loss caused by retinitis pigmentosa (RP). Usher syndrome is usually present at birth or shortly thereafter.

Organizations:

Helen Keller National Center
141 Middle Neck Road
Sands Point, NY 11050
Phone: (516) 944-8900
Email: hkncinfo@hknc.org 

Foundation for Fighting Blindness
11435 Cronhill Drive
Owings Mills, MD 21117-2220
Toll Free: (888) 394-3937
TDD: (800) 683-5555
Email: info@blindness.org

Resources:

National Institutes of Health - Understanding Usher Syndrome

Last Revised: January 13, 2015