Research and Data Collection

Overview  Dementia logo

Information about the prevalence of dementia, circumstances of individuals with dementia, service capacity and utilization, as well as the cost and quality of dementia care, are critical to the implementation of the strategies that have been identified for promoting a more dementia-capable system of care in Wisconsin.

The Department's ability to measure success as system improvements are made is essential. Therefore, existing information sources are being revised and updated, and new sources of information are being developed. This is critical to the continued development and implementation of strategies for achieving a dementia-capable system of care.


  • Develop and implement a data collection plan to facilitate the evaluation of dementia care system redesign projects:
    • Identify data elements and sources for developing baseline measures.
    • Develop and employ metrics for measuring progress in achieving goals.
    • Collect and analyze data to monitor the impact of dementia-capable system efforts throughout the state.
  • Analyze current resources for residential care in Wisconsin:
    • Conduct a statewide study of residential care facilities to assess their capacity and level of dementia care they provide.
    • Analyze the geographic distribution of dementia care resources in relation to population.
  • Produce data for other topic areas based on the need of project teams.
  • Provide technical and analytical support for other teams on survey and data collection instruments, evaluation plans and reports.

Milestones Completed

  • Wisconsin's Aging and Disability Resource Center Dementia Care Specialist Activity Report (P-01284) (PDF, 476 KB)
  • Drafted a dashboard that enables the Department to monitor the impacts of its dementia-capable systems efforts throughout the state.
  • Secured federal Center for Medicare and Medicaid Services (CMS) authority to integrate Medicare data with state level data on cost and service utilization to improve the completeness of information on the Wisconsin population with dementia.
  • Conducted surveys with counties to gather detailed information on access and issues related to resources for people with dementia who are experiencing barriers in access to care and published the following reports:
  • Created a mechanism to collect data on the outreach and awareness work performed under the expanded Dementia Care Specialist program.
  • Estimated and Projected Wisconsin Dementia Population (P-01159) (PDF, 143 KB) in 2015 and future years, and the proportion covered by Medicaid, for use in tracking progress towards Project goals.



Last Revised: August 31, 2016

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