Children and Youth with Special Health Care Needs
Program
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Promoting quality care for children and youth with
special health care needs in Wisconsin.
Program Goal
To assure that children and youth with special health care needs are:
- identified early,
- receive high quality coordinated care, and
- their families receive the supports they need.
The Children and Youth with Special Health Care Needs Program collaborates
with national, state and community-based partners to link children to
appropriate services, close service gaps, reduce duplication and develop
policies to better serve families.
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Finding
Your Way: A Navigation Guide for Wisconsin Families Who Have Children and
Youth with Special Health Care Needs and Disabilities assists families
who may have concerns or questions about their child’s development or have
recently received a diagnosis of a special health care need or disability. It
provides brief descriptions of programs, services and systems of support and
gives contact information and links to learn more about these and other
resources.
Click on the picture to download a .pdf version of
the Guide at http://www.waisman.wisc.edu/cedd/pdfs/FindingYourWay.pdf.
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Order copies of
program brochures
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Who are Children and Youth with Special Health Care Needs?
The Program works to improve systems of care for anyone from birth through
age 21 with a chronic physical, developmental, behavioral or emotional illness
or condition. Some examples include ADHD, asthma, autism spectrum disorders,
childhood cancers, cerebral palsy, deaf or blind, diabetes, Down syndrome,
heart disease, and mental health conditions.
What is the impact on Wisconsin families?
Nearly 200,000 or 15.3% of Wisconsin children have a special health care
need, of which: " Over 1 in 10 children missed 11 or more days of school
due to illness, " Nearly 1 in 10 families report spending 11 or more
hours each week providing or coordinating their child's care, " Over one
third of families currently insured report their insurance is inadequate, and
" 1 in 5 report spending $1,000 or more each year for out of pocket
medical expenses.
Source: Child and Adolescent Health Measurement Initiative.
2005/2006 National Survey of Children with Special Health Needs, Data Resource
Center for Child and Adolescent Health website.
For more Wisconsin specific data on CYSHCN, go to: SLAITS-CYSHCN
Summary Report (publication date: 01/09) (PDF, 94 KB)
2010 National Performance Outcome
The Program advances the 2010 National Performance Outcomes, strengthening:
- Parent Leadership
- Medical Homes
- Health Insurance Coverage
- Screening and Identification
- Coordinated Services
- Transition to Adult Life
The
Wisconsin Department of Health Services, Division of Public Health, Bureau of
Family and Community Health, Family Health Section, Children and Youth with
Special Health Care Needs Program is funded by the Maternal and Child Health
Title V Services Block grant, Maternal and Child Health Bureau, Health
Resources and Service Administration, US Department of Health and Human
Services and other funding sources. For more information about the Maternal
Child Health Bureau, go to www.mchb.hrsa.gov. (exit
DHS)
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Last Updated: December 09, 2011 |
