Newborn Screening Program: Committee Structure

Image of a group of crawling babies

The role of the Newborn Screening Program (NBS) in the Department of Health Services (DHS) is to help ensure that the program succeeds in screening, diagnosing, and treating all Wisconsin newborns for certain conditions.

A committee structure provides recommendations on NBS to the Secretary of DHS.

Currently the structure consists of an Umbrella Committee, seven disorder specific subcommittees, an Education Subcommittee, and a Secretary's Advisory Committee on Newborn Screening (SACNBS).

What is the NBS Umbrella Committee?

The Umbrella Committee is an advisory committee of the Wisconsin Newborn Screening Program and provides recommendations to the DHS Secretary on aspects of the Newborn Screening Program. The Umbrella Committee is chaired by the Newborn Screening Program Medical Consultant, and includes the chairs of each of the subcommittees (clinical specialists), the State Newborn Screening Program Coordinator, the Director of the Wisconsin State Laboratory of Hygiene (WSLH), Co-Directors of the Newborn Screening Laboratory at the WSLH, and representation from the following: Advocacy Organizations (March of Dimes), American Congress of Obstetricians and Gynecologists (ACOG), Certified Genetic Counselor, Consumer/Parent, Ethics, Local Health Department, Registered Dietitian, Registered Nurse, Wisconsin Chapter American Academy of Pediatrics and the Wisconsin Hospital Association.

What are the NBS subcommittees?

The NBS Subcommittees are created or disbanded based on the list of conditions being screened in Wisconsin. The WSLH maintains a list of the current NBS subcommittees and information on upcoming meetings.

What is the Secretary's Advisory Committee on Newborn Screening (SACNBS)?

The Wisconsin DHS Secretary has established the Secretary's Advisory Committee on Newborn Screening (SACNBS) as a permanent review committee. The SACNBS advises the Wisconsin DHS Secretary on policy issues related to newborn screening, including making recommendations for additions to the mandatory screening panel of conditions. Membership of the SACNBS includes representatives with collective knowledge and expertise in the following areas: medicine and science; statistics and epidemiology; ethical, legal, social, and policy analysis; and laboratory medicine. The SACNBS includes representation from practicing physicians, the newborn screening program, and individuals with target conditions or their parents. Members are appointed by the DHS Secretary to serve staggered three-year renewable terms.

 

Last Revised: August 30, 2021