The role of the Newborn Screening Program (NBS) in the Department of Health Services (DHS) is to help ensure that the program succeeds in screening, diagnosing, and treating all Wisconsin newborns for certain conditions. A committee structure provides recommendations on NBS to the Secretary of DHS. Currently the structure consists of an Umbrella Committee, 7 disorder specific Subcommittees, an Education Subcommittee, and a Secretary's Advisory Committee on Newborn Screening (SACNBS).
What is the NBS Umbrella Committee?
The Umbrella Committee advises the DHS Secretary on all aspects of the Newborn Screening Program. The Umbrella Committee is chaired by the Chief Medical Officer of the Bureau of Community Health Promotion, and includes the chairs of each of the subcommittees, the State Newborn Screening Program Coordinator, the State Genetic Coordinator, the Director of the WSLH, Co-Directors of the Newborn Screening Laboratory at the WSLH, and representation from the following: Advocacy Organizations (March of Dimes), American Congress of Obstetricians and Gynecologists (ACOG), Certified Genetic Counselor, Consumer/Parent, Ethics, Local Health Department, Registered Dietitian, Registered Nurse, WI Chapter American Academy of Pediatrics and the Wisconsin Hospital Association. Members are recommended by the Chief Medical Officer of the Bureau of Community Health Promotion, and appointed by the State Health Officer.
What are the NBS subcommittees?
The NBS Subcommittees are created or disbanded based on the list of conditions being screened in Wisconsin. Members are recommended by the Chief Medical Officer of the Bureau of Community Health Promotion, and appointed by the State Health Officer. The WSLH maintains a list of the current NBS subcommittees and information on upcoming meetings.
What is the Secretary's Advisory Committee on Newborn Screening (SACNBS)?
The Wisconsin DHS Secretary has established the Secretary's Advisory Committee on Newborn Screening (SACNBS) as a permanent review committee. The SACNBS advises the Wisconsin DHS Secretary on policy issues related to newborn screening, including making recommendations for additions to the mandatory screening panel of conditions. Membership of the SACNBS includes representatives with collective knowledge and expertise in the following areas: medicine and science; statistics and epidemiology; ethical, legal, social, and policy analysis; and laboratory medicine. The SACNBS includes representation from practicing physicians, the newborn screening program, and individuals with target conditions or their parents. Members are appointed by the DHS Secretary to serve staggered three-year renewable terms.