Children and Youth with Special Health Care Needs (CYSHCN)

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Promoting quality care for children and youth with special health care needs in Wisconsin.


Birth Defect Prevention and Surveillance System

The Wisconsin Birth Defect Prevention and Surveillance Program is responsible for implementing Wisconsin Statute 253.12 which was enacted in May 2000. This statute calls for the establishment of a confidential birth defects registry comprised of birth defects found in children from birth to two years of age who are diagnosed or treated in Wisconsin by a physician, pediatric specialty clinic or hospital. Reportable conditions occur prior to or at birth and require medical/surgical intervention or interfere with normal growth and development.

  • Statute 253.12 defines a birth defect as a structural deformation, disruption, or dysplasia or a genetic, inherited, or biochemical disease.
  • As mandated by Statute 253.12, the Council on Birth Defect Prevention and Surveillance was formed to advise the Secretary of the Department of Health Services on all aspects of the establishment of the registry.  The membership is diverse and represents multiple perspectives on birth defects surveillance.
  • The administrative rules process was completed and the rules, Chapter DHS 116, (exit DHS) took effect on April 1, 2003.
  • The program received a grant from the Centers for Disease Control and Prevention (CDC) to support the establishment of a birth defects registry.  The Wisconsin Birth Defects Registry (WBDR) was developed and piloted in 2003-2004 and rolled out statewide in the summer of 2004.
  • The legislation requires a report to the legislature be submitted every two years. The most recent report was completed in June of 2012 (PDF,  928 KB) .

Wisconsin Birth Defects Registry (WBDR)

The WBDR is a secure web-based reporting system.  There are three reporting options:

  • A paper form (DPH 40054) may be submitted
  • An approved reporter may enter reports one at a time on a secure website
  • A reporting site may upload multiple reports from their electronic patient record system to the secure website

All reporters who use the website must sign a user agreement and are given acopy of the WBDR Security and Confidentiality Policy document. Reporters canonly view reports submitted by their organization. Only the WBDR stateadministrator in the Bureau of Community Health Promotion at DHS can view allreports.


WBDR Forms

WBDR Training Information

See the following links for more information about this program:

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Last Revised: January 9, 2015