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Children and Youth with Special Health Care Needs (CYSHCN) Partnerships

WCYSHCN people

Promoting quality care for children and youth with special health care needs in Wisconsin.


The Children and Youth with Special Health Care Needs (CYSHCN) Program promotes family and provider partnerships and collaborates with parent-led organizations in the state.

ABC for Health, Inc.

ABC for Health, Inc. is a Wisconsin-based, nonprofit public interest law firm that promotes healthy equity and social justice. ABC for Health is dedicated to ensuring health care access for children and families. ABC for Health’s mission is to provide health care consumers with the services and support they need to navigate a complex health care financing system.

Email Brynne McBride at: bmcbride@safetyweb.orgrynne or call 608-261-6939 x210. 

Connecting Families

Connecting Families is supporting Wisconsin families with children and youth with special health care needs by connecting families through a network of support parents (and groups) that represent the diversity of families and their unique needs (including culture, race, language, disability and many other factors).

Email Gail Chodron at: or call 608-890-0145. 

Family Voices of Wisconsin

Family Voices of Wisconsin supports the voice of families in decision-making, leadership and systems change. Family Voices provides information, training and support around healthcare and community services to families and professional partners.

Services include: "Did You Know? Now You Know" parent trainings; Co-sponsorship of the Circles of Life, an annual conference for young people; Wisconsin Family to Family Health Information Center; and resource materials.

Email Danielle Tolzmann at: danielle@fvofwi.organielle or call 608-669-8824.

Genetics Systems Integration Initiative

The Genetics Systems Integration (GSI) Initiative aims to reduce disparities and improve access to genetics services in Wisconsin. Based out of the University of Wisconsin–Madison's Waisman Center, the GSI Initiative works to strengthen systems of care.

The GSI Initiative is an information resource for genetic and non-genetic healthcare providers in Wisconsin. Ways this information is disseminated include: The Wisconsin Genetics Exchange (an annual statewide professional development conference), Genetics continuing education modules, and the Genetics in Wisconsin website.

Email Sara Zoran at: or call 608-262-0181.

Wisconsin Well Badger Resource Center

Wisconsin Well Badger Resource Center is a statewide health information and referral service, connecting people to the social, health, and government programs available in their community. Well Badger staff can be reached through a toll-free number, by text message, or by social media chat.

Email Lauren Lotter at: llotter@wwhf.orgauren or call 608 251-1675x122.

Children’s Resource Centers

Wisconsin has regional centers for Children and Youth with Special Health Care Needs (CYSHCN) that can help families get answers, find services, and connect with community resources. Their services are free and private.

Related resource

The Team Engagement for Quality Improvement Welcome Booklet, P-02349 (PDF) is an introduction for families and health care teams working together to improve care for children and youth with special health care needs. This booklet contains tips from health care team members and family representative team members to help you and your team in your quality improvement work.

Last revised April 9, 2024