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Maternal and Infant Mortality Related Resources and Data

DHS releases new reports on infant deaths and where to focus efforts in Wisconsin

The Wisconsin Perinatal Periods of Risk (PPOR) reports, P-00609. highlight factors contributing to infant deaths and where efforts and expanded action can promote healthy birth outcomes. The data continue to show troubling disparities, with non-Hispanic Black infants three times more likely to die before their first birthdays than non-Hispanic white infants. During those same years, the infant mortality rate for American Indian or Alaska Native infants was 1.5 times the rate for non-Hispanic white infants. Read the full press release.

Latest reports

Released 2023, PPOR Analysis, 2015–2019

The PPOR reports identify inequities in fetal and infant mortality impacting non-Hispanic Black communities and Native American/Alaska Native communities. The reports look at how many deaths could be avoided if death rates were the same across different groups. Death rates for populations impacted by inequities are compared to lowest observed rates to better understand excess deaths. Understanding what causes inequities in fetal and infant deaths helps us to focus prevention efforts.

Released 2023, Birth Outcomes Resource

Birth outcomes⁠—including stillbirth, infant mortality, preterm birth, and low birthweight⁠—are key indicators of perinatal and infant health. This resource will include data on select birth outcomes over time and by characteristics of the birthing parent. It is important to monitor birth outcomes data to better understand the health of our communities.

Wisconsin Birth Outcomes 2021, P-03389 (PDF, March 2023)

Released 2022, PRAMS 2018-2019 Surveillance Report

PRAMS, the Pregnancy Risk Assessment Monitoring System, is an ongoing survey of new mothers conducted jointly by the CDC (Centers for Disease Control and Prevention) and state health departments. In each participating state, PRAMS collects population-based data on maternal attitudes and experiences before, during, and shortly after pregnancy.

Released 2022, 2016-2017 Wisconsin Maternal Mortality Report

The Wisconsin Maternal Mortality Review Program has recently released a report that includes a high-level overview of Wisconsin’s pregnancy-associated deaths that occurred in 2016-2017.

This project was supported by the Enhancing Reviews and Surveillance to Eliminate Maternal Mortality (ERASE-MM) grant, funded by the CDC.

Please see the report for an overview of the data, and recommendations from the Wisconsin Maternal Mortality Review Team, P-03226, to prevent future pregnancy-associated deaths.

Funding opportunities

We are sharing some Maternal and Infant Mortality relevant funding opportunities, updated on a monthly basis. If you know of others, please let us know so we can include them.

Integrated Maternal Health Services

The Health Resources and Services Administration, Maternal & Child Health Bureau is making funds available to foster the development of integrated health services models, such as the Maternity Medical Home which is modeled after the patient centered medical home. The models developed and demonstrated by this program will support comprehensive care (including clinical, ancillary, behavioral health, and support services) for pregnant and postpartum people who experience health disparities and have limited access to basic social and health care services. Eligible applicants include any domestic public or private entity, including an Indian tribe or tribal organization. Domestic faith-based and community-based organizations are eligible to apply.

The deadline to apply is May 24, 2023.

Community Impact Grant

The Wisconsin Partnership Program’s Community Impact Grant Program supports community partnership initiatives that seek to improve health and advance health equity by addressing the social determinants of health. This year there are two grant award levels available. Each grant award level has a maximum award amount for up to three years. Level one will award up to $250,000 and is designed for small to medium sized organizations. Level Two will award up to $500,000 and is designed for larger organizations; an academic partner is required. A Community lead organization is required and must be a Wisconsin-based, nonprofit, IRS tax exempt, 501(c)(3) organization, or a tribal or local government entity.

The level two deadline to apply is: May 24, 2023.

Healthy Wisconsin Families: Investing in the Infrastructure of Maternal and Infant Health

The University of Wisconsin School of Medicine and Public Health and state Department of Health Services (DHS) are teaming up to improve maternal and infant health across Wisconsin through a new funding opportunity. Proposed pilot projects should focus on underserved and marginalized Wisconsin communities and be designed to address inequities in health outcomes for infants, children, women, and pregnant people. A community lead organization is required and must be a non-profit hospital/health system, Federally Qualified Health Center or other non-profit clinical care entity in partnership with one or more established community partners.

The deadline to apply is May 30, 2023.

Tribal Maternal, Infant, and Early Childhood Home Visiting Program: Development and Implementation Grants

U.S. Department of Health and Human Services, Administration for Children and Families is making funds available to support 63-month cooperative agreements between ACF and federally-recognized Indian tribes (or a consortium of Indian tribes), tribal organizations, or urban Indian organizations to support the following: conduct community needs and readiness assessments; develop the infrastructure needed for planning and implementation of evidence-based maternal, infant, and early childhood home visiting programs; provide high-quality, evidence-based home visiting services to pregnant women and families with young children aged birth to kindergarten entry; implement performance measurement and continuous quality improvement (CQI) activities; and engage in activities to strengthen early childhood systems of support for families with young children.

The deadline to apply is May 31, 2023.

Sudden Unexpected Death (SUID) and Sudden Death in the Young (SDY) Case Registry Funding

The CDC, National Center for Chronic Disease Prevention and Health Promotion, Division of Reproductive Health announces the availability of fiscal year 2023 funds under a new five-year multi-component cooperative agreement for the SUID and SDY Case Registry. The purpose of this five-year cooperative agreement is to support SUID and SDY monitoring programs in states and jurisdictions.

The deadline to apply is June 1, 2023.

State Maternal Health Innovation Program

The purpose of this program funded by the Department of Health and Human Services Health Resources and Services Administration is to reduce maternal mortality and severe maternal morbidity by supporting state-led demonstrations focused on improving maternal health and addressing maternal health disparities through quality services, a skilled workforce, enhanced data quality and capacity, and innovative programming. Eligible Applicants include Native American tribal governments, Public and State controlled institutions of higher education, State governments, Independent school districts, Native American tribal organizations (other than Federally recognized tribal governments), City or township governments, Nonprofits having a 501(c)(3) status with the IRS, Private institutions of higher education, and County governments.

The deadline to apply is June 2, 2023.

Tribal Maternal, Infant, and Early Childhood Home Visiting Program: Implementation and Expansion Grants

The Department of Health and Human Services, Administration for Children and Families is making funds available to organizations currently operating an evidence-based home visiting program serving expectant families and families with young children aged birth to kindergarten entry, and propose to sustain or expand their established infrastructure for home visiting services in tribal communities. This funding is intended for tribal entities that have an established history of implementation of high-quality, culturally grounded, evidence-based home visiting services to AI/AN families and children and are currently operating these services. Eligible applicants are federally recognized Indian tribes (or consortium of tribes), tribal organizations, and urban Indian organizations.

The deadline to apply is June 30, 2023.

Institute for Home Visiting Workforce Development
The Health Resources and Service Administration is making funds available for home visiting programs to expand, support, and retain a diverse and qualified workforce.

Applications are due by July 14, 2023.

Healthy Start Initiative: Eliminating Disparities in Perinatal Health
The Health Resources and Service Administration is making funds available to improve health outcomes before, during, and after pregnancy and reduce racial/ethnic differences in rates of infant death and adverse perinatal outcomes.

Applications are due by July 17, 2023.

Wisconsin Medical Society Foundation Community Grant

The Wisconsin Medical Society Foundation focuses on providing support for physician-led, community-based or statewide programs to improve health through education and outreach to improve health and health equity in Wisconsin. They are accepting funding requests on a rolling basis for critical support during the pandemic and for programs to increase health equity.

The deadline is ongoing.

Wisconsin Health Services Scholarship Program

The Health Services Scholarship Program was created (by 2019 Act 9, § 39.465, Wisconsin State Statutes.) to encourage health services professionals to practice in health shortage areas in Wisconsin by awarding scholarships to dentists, primary care physicians, and psychiatrists.

The deadline is ongoing.

Data for action

To help make data easily available, we assembled a list of resources and a guide to using WISH (Wisconsin Interactive Statistics on Health) for your own data queries on a wide-range of health indicators. The WISH guide illustrates how to create a query, an explanation of searchable measures, and step-by-step examples.

We also put together this resource that organizes and lists a number of freely available, online data sources. Data sources are grouped into broad categories and are accompanied by a description of the data and links. If you have any feedback or suggestions about this guide as well, please email us.

America’s Health Rankings: National and state data topics include socioeconomic factors, physical environment, clinical care, health behaviors, and health outcomes. Trend data is available. Data can be stratified by gender, race and ethnicity, education, and is available in graphs, tables, and within text.

Behavioral Risk Factor Surveillance System (BRFSS), CDC: National, state, county, and city (Madison, Milwaukee) data topics include risk behaviors, overall health status, healthcare utilizations, and chronic health conditions. Data is provided on adults only. BRFSS offers an interactive query system, reports, publications, fact sheets, and datasets.

County Health Rankings and Roadmaps: National, state, and county data topics include health outcomes, health behaviors, clinical care, socioeconomic factors, and physical environment. This includes maps, reports, and tables.

Healthy People, Office of Disease Prevention and Health Promotion: National and state data topics include chronic disease, health behaviors, health outcomes, maternal and child health, and socioeconomic factors. Trend data is available for some measures. Data can be stratified by sex, race and ethnicity, and is available in graphs, maps, and tables.

National Health and Nutrition Examination Survey (NHANES), CDC: National data topics include demographics, dietary behaviors, physical examination results, and biomarkers. Includes data on both children and adults. They have an interactive query system (for select measures) with reports and publications, tables, and datasets.

National Health Interview Survey (NHIS), CDC: National data topics include overall health status, medical conditions, healthcare utilization and access, and insurance. It includes data on both children and adults. Data can be stratified by sex, race and ethnicity, age, income, and more. They have an interactive query system with reports, publications, and datasets.

State Health Facts, Kaiser Family Foundation: National and state data topics include demographics, insurance, COVID-19, women’s health, mental health, and health status. Data is in maps and tables.

Survey of the Health of Wisconsin (SHOW), UW-Madison: Wisconsin data topics include demographics, physical health, mental health, healthcare, health behaviors, environment, socioeconomic factors, COVID-19, and biomarkers. It includes publications on both children and adults, with tables and datasets upon request.

Wisconsin Data and Statistics, Wisconsin DHS: State and county data topics include behavioral health, substance use, chronic conditions, environmental health, cancer, vital statistics, and more. They are available as graphs, maps, reports, and tables.

Wisconsin Public Health Profiles, Wisconsin DHS: State, regional, and county data topics include births, deaths, hospitalizations, cancer, other diseases, and motor vehicle crashes. Reports are available across years to assess trends. Reports and tables are available.

Maternal and Child Health Bureau, Health Resources & Services Administration (HRSA): National and state data topics include Title V funding and objectives. Graphs and maps are available.

KIDS COUNT Data Center, Annie E. Casey Foundation: Data topics include children’s demographics, education, housing, family, health, safety, and more. Levels of data include national, state, county, school district, Wisconsin region, and city with trends available for some measures. Data can be stratified by gender, race and ethnicity, age, and more. They have an interactive query system with graphs, maps, and tables.

National Survey of Children’s Health (NSCH) Child and Adolescent Health Measurement Initiative: National, regional, and state data topics include children’s physical health, mental health, healthcare access, family, neighborhood factors, school, and social context. Data can be stratified by subgroups including children and youth with special health care needs and is available across years to assess trends. They have an interactive query system with graphs, tables, and datasets.

Wisconsin Department of Children and Families (DCF) Reports and Data: State and county data topics include child support, child welfare and abuse, Wisconsin Shares program, and employment. Trend data is available. Some data available at county level as well. Data is available in graphs, maps, reports, and tables.

Youth Risk Behavior Survey (YRBSS), CDC, and the Wisconsin Department of Public Instruction: Data topics include youth violence, substance use, sexual health, diet, physical activity, and more. Levels of data include National, State, and City (Milwaukee). They have an interactive query system with reports, publications, tables, fact sheets, datasets, and trend data through the CDC.

Listening to Mothers, National Partnership for Women & Families: National data topics include pregnancy planning, pregnancy experiences, birthing, postpartum period, breastfeeding, views on healthcare system. Data is available as reports and datasets.

Office on Women’s Health (OWH), Health Information Gateway, U.S. Department of Health & Human Services: National, census region, and state data topics include demographics, births, pregnancy, mortality, infant mortality, disease, overall health status, and risk factors. Data available includes graphs, maps, and tables through an interactive query system.

Pregnancy Mortality Surveillance System (PMSS), CDC: National data topics include pregnancy-related deaths over time, maternal mortality by race, and leading causes of maternal mortality. Data available includes graphs and tables.

Pregnancy Risk Assessment Monitoring System (PRAMS), CDC, and Wisconsin DHS: Data topics include preconception maternal health and behaviors, prenatal care, insurance, pregnancy health and behaviors, postpartum health, contraception, social factors, and early parenting behaviors. Data available includes reports, publications, tables, and trend data for some measures. Datasets are available upon request.

Diversity Data Kids: Data topics include the Child Opportunity Index, demographics, socioeconomic factors, and basic health measures. Features census tract data available in graphs, maps, and datasets.

GetFacts, Wisconsin’s Demographic Data and Visualization Portal, Applied Population Lab: Data topics include demographics, population trends, environmental factors, community factors, civil rights review, housing, and economics. Data levels include state, county, and county subdivision and are available in graphs and maps.

Neighborhood Atlas, Applied Population Lab: Data topics include the area deprivation index measure of socioeconomic disadvantage. Data is mapped at a sub-city, neighborhood level and available as maps and tables.

Wisconsin Food Security Project, Applied Population Lab: Data topics include demographics, economic security, food security, health, food, environment, and federal food programs. Trend data is available for some measures, Data levels include Wisconsin, Wisconsin regions, counties, and school districts. Data is available in graphs, maps, and tables.

U.S. Census Bureau: Data topics include demographics, population characteristics, housing, family arrangements, internet access, education, economy, income, business, geography, and more. Data levels include national, state, county, and city and is available as graphs, maps, and tables.

WisConomy, Wisconsin Department of Workforce Development: Data topics include jobs, employment, income, and taxes. Data levels include national, Wisconsin, county, and city. Trend data is available. Graphs and tables are available through and interactive query system.

Wisconsin Family Health Survey, Wisconsin DHS: Data topics include demographics, insurance coverage, poverty, mental health, and internet access. Data levels include state, region, and county and is available as reports or tables.

Wisconsin Health Atlas, UW School of Medicine and Public Health: Data topics include farm to school programs, outdoor opportunity measure, obesity, and neighborhood walkability. Data levels include state, region, school district, and zip code. Data is available in graphs and maps.

Wisconsin Local Data on Poverty Status and Health Insurance Coverage, Wisconsin DHS: Data topics include poverty status, insurance coverage, and primary insurance type. Data levels include state, region, and county. Tables and trend data are available

National Environmental Public Health Tracking Network, CDC: Data topics include environmental health and exposures, chronic disease, community factors, and some birth outcomes. Data levels include county and census tract. Graphs, maps, tables, and datasets are available through an interactive query system.

Wisconsin Environmental Public Health Tracking, Wisconsin DHS: Data topics include air quality, births, chronic disease, carbon monoxide, community factors, climate, lead, oral health, and more. Data levels include state, county, and census tract. Graphs and maps are available through an interactive query system. Trend data is also available.

Health Resources and Services Administration (HRSA): State level data topics include healthcare funding, healthcare sites and resources, and organ donation. Maps, fact sheets, tables, and datasets are available through an interactive query system.

Medical Expenditure Panel Survey (MEPS), Agency for Healthcare Research and Quality: Household component (HC) data topics include healthcare costs, utilization, coverage, and accessibility. Insurance component (IC) data topics include insurance coverage. Data levels include national, census region, and state. Trend data is available. Graphs, tables, and datasets are available through an interactive query system.

National Healthcare Quality and Disparities Reports (NHQDR), Agency for Healthcare Research and Quality: National and state data includes performance on over 250 healthcare quality measures. Trend data is available. Graphs and tables are available through an interactive query system.

Wisconsin Oral Health Program, Wisconsin Healthy Smiles Survey, Wisconsin DHS: Data topics include adult oral health tracking, burden of oral disease, and children’s oral health. Data levels include national, state, and county. Reports are available through an interactive query system.

Web-based Injury Statistics Query and Reporting System (WISQARS), CDC: Data topics include violent deaths, fatal and nonfatal injuries, burden of injuries, transportation crashes, and leading causes of death. Data can be stratified by sex, age, and race and ethnicity. Data levels include national, regional, state, and county. Graphs, maps, and tables are available through an interactive query system.

Wisconsin Injury Prevention Program, Wisconsin DHS: Data topics include violent deaths, burden of injuries, and transportation crashes. Data levels include the state, region, and county and is available as graphs, maps, and reports.

Interactive Atlas of Heart Disease and Stroke, CDC: Data topics include heart disease, strokes, heart disease risk factors, and socioeconomic factors. Data levels include state and county and is available in maps and tables.

PLACES: Local data for better health, CDC: County level data topics include asthma, cardiovascular disease, cancer, kidney disease, diabetes, mental health, and more. Maps are available with datasets available upon request.

Wisconsin Asthma Surveillance Program, Wisconsin DHS: Data topics include asthma rates, prevalence, and related emergency department visits. Data can be stratified by race, income, and more. Data levels include state and county with data available in maps, reports, factsheets, and table.

Wisconsin Cancer Reporting System (WCRS), Wisconsin DHS: Data includes incidence rates of any cancer or specific cancer locations. Trend data is available. Data can be stratified by sex and race and ethnicity. Data levels include state, Wisconsin region, and county. Data is available as maps, reports, publications, tables through and interactive query system. Datasets are available upon request.

Wisconsin Chronic Disease Prevention, Wisconsin DHS: Data topics include diabetes, prediabetes, heart disease, stroke, nutrition, physical activity, obesity, and chronic disease burden inequities. Data is available as graphs, maps, reports, and factsheets.

Wisconsin HIV Surveillance Program, Wisconsin DHS: Data includes incident and prevalent HIV cases. Data can be stratified by sex, age, and race and ethnicity for the state and by county as reports and tables. Trend data is available.

National Vital Statistics System (NVSS), CDC: Data topics include births, deaths, fetal deaths, life expectancy, marriages, and divorces. Data is available as reports, publications, tables, and datasets.

Wisconsin Births and Infant Deaths, Wisconsin DHS: Data topics include births, infant deaths, maternal age, demographics, birth outcomes. Data can be stratified by race and ethnicity and other demographics. Data levels include state and county with data available as reports and tables.

Wisconsin Interactive Statistics on Health (WISH) Query System, Wisconsin DHS: Data topics include risk behaviors, births, cancer, injuries, mortality, opioids, population measures, and violent death. Data levels include state, Wisconsin region, county, city, zip code, and local health department. Tables are available through an interactive query system.

WONDER, CDC: Data topics include births, infant deaths, fetal deaths, deaths, health, and environmental health. Data levels include nation, census region, state, and county. Tables are available through an interactive query system.

WISH guide and data requests

Wisconsin Interactive Statistics on Health (WISH) Query System Guide

The WISH query system is a powerful tool to access Wisconsin birth related data and includes birth counts, fertility, mortality, low birthweight, prenatal care, and teen births. In addition to birth related information, data topics include risk behaviors, births, cancer, injuries, mortality, opioids, population measures, and violent death. Data levels include the state, Wisconsin region, county, city, and zip code.

WISH video tutorial

Data request

We are developing a form to simplify data requests. In the meantime, please email us and we will follow-up to confirm details.

Grief support and bereavement resources

Have you or your family been impacted by an infant loss? The Wisconsin Department of Health Services funds partners across the state so that families who lose a baby have access to grief support and bereavement resources. These partners also provide resources for those serving grieving families. The services are free and available to anyone in Wisconsin.

Last revised May 24, 2023